Trisomy 13

My son Joe was diagnosed at 18 weeks with Trisomy 13.  I began sharing our story to find families like ours and facilities that would give him the care he needed.  Joe left us on February 15, 2013.  We never got to hear him cry or have him hold our hand.  Our decision to give Joe every chance at life is one we don't regret for a single second.  We would have liked a whole lot more time.

The links below are posts about Joe and our experience with Trisomy 13.

 Life will never be the same

 MaterniT21 test

 We can't do this alone

 Obituary for Joe Grayson Morgan

 March 20 - Month and five days

April 2, 2013 - Six weeks and four days

April 17, 2013 - Two months and two days

May 2, 2013 - Eleven weeks

May 8, 2013 - Eighty-two days

June 4, 2013 - 110 days

June 16, 2013 - Four months and one day

June 29, 2013 - Four months, two weeks and one day

July 18, 2013 - Five months, three days

August 3, 2013 - Not quite six months

August 9, 2013 - Still not six months

August 25, 2013 - Memorial for Joe

September 14, 2013 - Seven months

September 29, 2013 - Seven and a half months

October 17, 2013 - Don't let the bastard gets you down

Comments

Post a Comment

Popular posts from this blog

So you want to talk about mental health

Have you caught that show on cable lately about mental health and the chick doing the interviews is like mentally ill? Not like sittin naked in the bath tub rubbing feces on herself but like legit PTSD. She had a kid that died I think or some shit like her Dad didn’t hug her enough. She used to be my roommate so I overheard her on the phone talking about it. That’s how we talk about mental illness. Those are direct quotes from different people.  I published a book about how I “got” PTSD and my mother-in-law posted a review on Amazon that said anything negative in there about her was due to my mental illness making me remember stuff wrong. That’s how we talk about mental illness. When a guy back in Newfoundland started a charity for mental health I sat my oldest son down and told him all about it. He wanted to know what mental illness meant and I said it’s like stuff in your mind that you can’t help, like being sad but for no reason, or worrying all the time when t...
Read more posts...

We started a podcast! OOPS NL

Image
The following is a transcript of the OOPS NL podcast, episode #1 For just the audio: https://oops.blubrry.net/2019/06/21/oops-the-podcast-june-21-2019/ For the video on Youtube: Link can be found here OR https://www.youtube.com/watch?v=UNT-fKT8fQA&feature=youtu.be Hi I'm Vickie Morgan Host of Ounce of Prevention. Also that's shortened into O O P S Ounce of Prevention show just who whoops we're off to a great start. Actually this is the third time I've started it.   The first time I didn't have pants on and the second time I farted. Don't want to make it too real too soon. So this is Ounce of Prevention. Ounce of Prevention actually started three years ago in Maine where we were living and I started doing some stuff for public access stations and started doing my own production with my own cameras, editing myself, etc. So I did a season in Maine and then I did a season that I shot in Canada at the ECMA. And then I moved home. As a ...
Read more posts...

MaterniT21 test

January 4, 2013 We considered getting a second opinion.  Maybe go to Boston or to the Catholic hospital in town so maybe they wouldn't be so quick to offer an abortion. We have already been to the best facility in the state.  If we went to a less-equipped place, they would refer us right back to where we had gone already.  Boston would tell us the same thing.  We needed more information and despite our vow to never set foot in the hospital again - we went back. There's a blood test they can do on me called MaterniT21.  It's only being performed by a lab in California and it takes two weeks to get the results.  It's intended to look for Trisomy 21 which is Downs Syndrome.  When the baby's blood cells break down, some of the dna material comes out in my blood.  They can also look for Trisomy 18 (Edwards Syndrome) and Trisomy 13 (Patau Syndrome). According to the internet : This test is most accurate at detecting T21 (Trisomy 21...
Read more posts...